Since setting up this site, I've had quite a few messages
from people with symptoms the same or similar to those I have experienced. I
have included a selection of quotes here, with permission from the
... when I've been lying in bed, generally when the
room is darker but still visible. I feel the distortion of body image (not
visual but how my hands & limbs feel), touch, & vision
My notes: Quite often, especially if I
have been asleep for a long time (12h+) I wake up feeling paralysed and my
hands look and feel very strange, with my fingers appearing very long and
... in its [Temporal Lobe Epilepsy] milder forms, the
seizures are profoundly subjective, profoundly difficult to put into words.
Deja vu, that's easy to communicate, but other TL seizures border on religious
experience - or can be as ordinary as a migraine.
notes: I included the Temporal Lobe Epilepsy link, because it seemed to
suggest that AIWS may be related in some way. I was sent a link to an
interesting quiz, which refers to a different (?) type of epilepsy. It's
interesting to me as I recognise nearly all of the described symptoms. I have
had tests for epilepsy: the results were negative.
In my case
it used to happen in the evenings when I was concentrating on a book or on a
After trying numerous drugs, enduring
several hospitalizations and a number of doctors (one tried to tell me my son
must be mentally ill) we finally found a drug that worked. Neurology at the
[clinic] suggested Periactin - an old antihistamine. After one pill my son's
vision was normal up to about 7 feet. After two pills he was completely normal.
He has been symptom free for several weeks now.
notes: I hesitate to suggest remedies here, especially drugs, so please,
don't take the above quote as advice. I'm not qualified as a medic in any
sense, I'm just collecting information here.
When I was
young, around 5 to 10 years old, I would have these "episodes" when the world
around me would instantly become a mirror image of what I was used to. It
happened once when we were returning home and we were riding down the one-way
street we lived on. All of a sudden, it felt as if we were now going east
instead of west, all of the traffic was going in the wrong direction, and our
house was now on the opposite side of the street, and at the other end of the
block. Once in the house it was difficult to find my way around. Then all of a
sudden things were back to normal.
My notes: these
symptoms are different from those I have experienced and previously heard
about, yet appear (to me at least) to be a variation on the theme. I included
the quote as I found it very interesting.